I woke up this morning exhausted. I barely got any sleep last night, too full of worry. I also woke up this morning with a feeling of dread. I dread what Kaylee is going to go through this next week. I'm dreading what she is going through right now in the operation room. I'm sitting in the waiting room with worry, anticipation, and the feeling of emptiness. Knowing that my daughter wont be coming home with me tonight is the worst feeling. I've put my daughter, my love, my world in the hands of Drs and nurses in hope that this will be the last time. Before Kaylee went into surgery they gave Kaylee "loopy" meds so she left my arms with a smile on her face. As of now we are just waiting to hear some news. We will probably be waiting for a good three hours or more.
-Kaylee's Mommy
Thursday, January 12, 2012
Friday, January 6, 2012
Phone Call
Today I got the phone call from the registration office and the day surgery nurse at Driscoll Children's Hospital. Kaylee is officially registered for surgery on January 12. The day surgery nurse asked about medical history and told me to bring Kaylee's comfort Items...So for sure Violet her doggy is coming!
And we cant forget froggie Blanket!
And we'll be bringing some of Kaylee's favorite sippy cups and all that good stuff. Its less then a week away from the surgery date!
-Kaylee's Mommy
And we cant forget froggie Blanket!
And we'll be bringing some of Kaylee's favorite sippy cups and all that good stuff. Its less then a week away from the surgery date!
-Kaylee's Mommy
Thursday, January 5, 2012
I was previously posting on another blog website but I like this one much better so here it goes!
My daughter Kaylee was born June 11, 2010.
Her birth was not that of a typical newborn baby. As soon as she was born they cleaned and wrapped her up, I gave Kaylee my love and kisses, took a quick picture, and they whisked her away to the NICU. This was all apart of the plan though... I knew at twenty weeks that my daughter would be born with a special heart. This was something that was very hard for me to deal with considering I was only seventeen years old at the time. Kaylee was in NICU for about a week. When I finally got to take her home all was right with the world. She was so perfect in every way it was hard to believe there was anything wrong with her.
At four months old Kaylee had her first open heart surgery to correct her Atrioventricular canal defect , October 26, 2010. It was a hard time for all of us, especially Kaylee. It was exhausting, not to mention at the time I was wrapping up my first semester of college.
Its been over a year since her surgery and we've come very far since then. Kaylee is almost 19 months old. Shes walking, talking, playing, and doing all the normal things a toddler should be doing.
A couple months ago we found out Kaylee will be having another surgery! Her cardiologist told us we could get through the holidays (Thank goodness) and then it would be time to schedule surgery. Right now we are exactly a week away from surgery! I am more at ease this time around because I know what to expect but I hate that Kaylee is going through this again. I will make sure to keep everyone up to date on how things go so stay tuned!
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